Global Genes is a global non-profit advocacy organization for individuals and families fighting rare and genetic diseases. The organization is associated with a blue denim "Genes Ribbon" that is intended to raise awareness of patients affected by rare and genetic diseases.[1] Global Genes uses a simple concept of "jeans and genes" to promote awareness of rare disease; its slogan is "Allies in Rare Disease".[2]
History
The organization was founded in 2009, and is associated with several rare disease awareness campaigns a numerous fundraising efforts.
The organization has gained recognition for campaigns and annual involvement in promoting Rare Disease Day.[3]
References
- ^ "Rare Disease Day spotlighted Monday". Orange County Register. February 26, 2011. Retrieved 24 August 2012.
- ^ "They'll be wearing Jeans for Genes". NorthJersey.com. February 24, 2012. Retrieved 24 August 2012.
- ^ "RemedyMD and the Children's Rare Disease Network Announce Plan to Give Away Free Rare Disease Research Registry Valued up to $50,000 via Contest". February 25, 2011. Genetic Engineering & Biotechnology News. Retrieved June 6, 2011.
External links
This page was last edited on 19 September 2023, at 12:42